It’s been a crazy few months. Wanted to dash off a Merry Christmas and Happy Holidays to you all. This is my favorite gift, from Peter of Wombania
Taking steps to regain my life back, literally. Really not steps so much as generic ambulation. It’s a start and it’s cooler than bow ties and a fez. The fatigue from the disease is akin to being hit by a truck every single day. The pain too. I ask you all to forgive my absence. The only thing I want for Christmas? A cure for Transverse Myelitis and for all of those who suffer far worse than myself.
Was accepted to the Johns Hopkins Transverse Myelitis program. All set to buy the plane ticket and check in for the first appointment. After much back and forth on the phone it was decreed at the last minute: there is no housing for out-patients in clinic programs.
What the hell? Don’t they know who I am? Will work for treats.
Rents in Baltimore? Out of my league. Assisted living options in Baltimore for six months? Throw that in the ‘Brother Can You Spare A Dime’ pile as well. Tried everything possible to find funding. Nothing could be done. No charities for TM, no way to set up a fund or charity for myself. It’s still a dream.
Hell, I still don’t have an electric wheelchair, but I’m saving the gelt up.
Making strides far beyond the original prognosis -rim shot-. Hard work makes for amazing results. I lay about the house all day and exercise. It’s possible in Rachael Land
Was given a roughly 10% chance of walking again. Really? Don’t tell me what to do. I’m better off that way.
May you all have a wonderful, fattening, laughter-filled holiday iced with love and joy. If you don’t see me much it’s because I’m working on a new project, the most important one ever. Crafting a new life, learning to walk and talk and shake it baby.
Tripping the Light Fantastic. With no net.
Walk like an Egyptian? Never!
Dance like a Rockefeller? Hell yes.
Puttin’ on Riiiitz!
Merry Christmas to All and to All a Good Night!